European Hemophilia Consortium (EHC)

"The European patient organization"

 

The European Hemophilia Consortium (EHC) is an international non-profit organization that assists 45 national patient organizations with rare blood clotting disorders from 27 European Union (EU) member states and most member states to the Council of Europe.

 

The EHC represents about 90.000 diagnosed people in Europe with a rare blood clotting disorder like haemophilia, von Willebrand disease (VWD) and other rare blood clotting disorders.

 

The EHC is based on the knowledge of patients, health care professionals, the scientific community, European institutions and the pharmaceutical industry to share expertise throughout Europe. The EHC also narrowly cooperates with European patient organizations, to speak with a strong, unified voice on behalf of people with rare blood clotting disorders.